The Back Story
I was diagnosed with epilepsy at the age of 10, so I’ve been used to the seizures for a long time. I’ve always been lucky, though. I was considered well controlled. After the hormonal changes of my teen years I’d go about 5 years between seizures. But as I got older, 5 became 3, then 2….then months… This year, since January, I’ve had about 5-6 tonic clonic seizures (full convulsion). This includes the times I’d have 2 in one day. I’ve also had 4 complex partial seizures, which can develop into tonic clonic seizures, but they didn’t. On top of these, I’ve had a couple of simple partial seizures, where you just appear to “space out” a minute. I realize it happened, note it in my diary, and move along. Twelve, total, according to my neurologist, when I saw him in late June/early July. Roughly in a 6 month period.
I’ve tried countless medications. They either stop working, don’t work, or I have horrible reactions to them.
He says I have medicinally resistant epilepsy, which sounds a bit frightening to me. But that’s why I’m here today.
We drove in this morning to check-in at the gawdawful hour they wanted me to be here. We decided to leave early to allow ourselves time to get lost, as this was right in the middle of the “medical district” in Houston, where tons of hospitals are, and this particular hospital is HUGE!! While I’m not an early riser, I must say, sunrise over downtown was beautiful. Unfortunately, I was not awake enough to get a picture.
Check-in was…confusing. I’ve been here all day and no one has taken my co-pay yet. But, I seriously doubt I’ll get out of this for free.
On day 1, they do an MRI first. Being the claustrophobe I am, I took my Clonazepam and went with the nice gentleman. We got in there and he covered me with warm blankets, and did something new: he put a nice warm blanket around my head so I could cover part of my face and hide!!!! Oh, this helped so much!!! I went right to sleep and didn’t wake up until it was over.
Once back in my room, it was time to hook me up to all the wires. I feel like I could communicate with satellites now.
Yeah.. And this is how I’ll be for the next few days. Hopefully, I’ll be able to do daily updates. They actually *want* me to have a seizure in here, so, I don’t know how I’ll feel after that. Why, you ask? Why do they want me to have yet another one? Because they’re trying to pinpoint the area of the brain they come from. I don’t really like the idea of having yet another seizure, but if it helps in the long run, and if I don’t go into one of those seizures you can’t come out of, well, I’m in the right place.
Ok, fine. I’m terrified. But they’re good at explaining everything, right down to the why’s, and easing concerns as much as possible.