Epilepsy Monitoring Unit – Day 5

Still. No. Seizure.

So last night we did the sleep deprivation thing again (Wednesday, Day 4). I chose not to go to sleep at 3:00am, because I was still wide awake. Instead, I stayed up all night long. It’s now 4:15pm on Thursday. I’ve been awake for 31 hours 15 minutes, and I’m still going.

Last night/this morning, when it was dark outside, I watched strobe videos on YouTube. I re-watched Stranger Things Season 3 (for those who don’t watch, it has a photosensitive warning). The first time I’d seen season 3 I had to look away in all the “strobe” scenes. I felt like I missed half the season. Last night I got to see everything I missed.

As of this morning, I’m completely off my seizure control meds. Tonight I’ll have missed 2 doses. My husband came to see me this afternoon. He thinks I’m going to seize tonight. He says I’m showing some of the early warning signs that he’s learned to notice. Things like the look in my eyes or something about how my moods swing back and forth erratically. I hope he’s right, because I could have sworn I heard another person in my room while we were talking. Someone male, yawning very loudly. No one was there and he didn’t hear anything. This could be pre-seizure, or it could be some kind of hallucination because I’ve been up so long. I’m not sure how long you have to be awake for something like that to happen.

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